Got in yesterday to Rochester, flew from Boise to Denver to Chicago then to Rochester. Was a nice 12 hours of flying and waiting. Got the same hotel room as last time. Which made me laugh. Feel like I am spending a lot of time in hotel rooms this week. Saw Boondock Saints II and it was disappointing. Too over the top really enjoyed the first one but this one fell way short.
Today I got up at 5 am got to my blood work and had that done then went for an ECG. ECG was to make sure they know how my heart works when monitoring my surgery. So that was done, went and took a nap, woke up ate a little bit and got ready to for the exciting part, talking to the surgeons and getting my date for the surgery to cure me. Right before I leave to walk over to the appointment, my oncologist calls me and lets me know they never got the CT scan I did in Boise last week. So I call Boise and ask them to send it again, they fax information saying nothing has really changed on the scan from last time about a month ago.
The mayo oncologist calls me back and says we are going to do a CT Scan here in 20 minutes. I run over there and wait and wait. I am impatient and pissed because I just did this a week ago to make today easier and now it just sucks.I get two bottles of iodized water to drink. I have a power port in so they don't have to go through my arms all the time when giving me medicine or drawing blood. In Boise it is very simple to get it used but here at the Mayo it is like this huge hassle. To take blood in the morning I just went through my arm. I should have gone through my arm again but I didn't for this. They called some lady over from somewhere else and she brought a cart that had the stuff to access my port. It was like a huge production and some of the nurses had no idea how to access a port. Radiology should know I would think. CT scans should have that at their hands pretty easy.
By the time I got into see the doctor the surgeons had no more time to talk to me I will have to wait until Thursday. The CT scan wasn't loaded by 5 pm and by that time everybody is done at the Mayo Clinic. It is stupid as hell. I believe if I would have got the go ahead from them I could have had surgery tomorrow and been heading home by Friday or Saturday, now I can't see them until Thursday and probably won't have surgery until Friday or Monday, which would mean I won't be home for at least another week. THIS TOWN SUCKS BALLS TOO, so it is no fun to hang out in, you can't go outside and without a car there is nothing to do.
My mom comes tomorrow which is OK I guess, hanging out with mom and dad can be OK. Hopefully, at least she is renting a car so I can go to a movie theatre or something if surgery doesn't happen. I just want this to happen. I am pretty nervous about surgery because putting me to sleep and hoping I wake up is a little scary. It is giving up a lot of control which I don't like. INSURANCE GOT APPROVED which is huge since it will save my parents retirement. I am tired of having to babysit doctors all the time. I make so many calls to make sure doctors are on track it is stupid, I even called the mayo clinic last wed to make sure they got the CT scan and I swear they told me they did. Of course they didn't. Bunch of BS.
Home life is calling me to get stuff done, I don't have time for all of this cancer bullshit. I have kids to hang out with and take care of. I just want life to turn around sometime soon. I think I see the light though, if this surgery is successful, despite the temporary colostomy bag it will be nice to finally put most of this behind me and work on my second life. My real life my better life. Looking forward to it.
I will let everybody know what happens on Thursday
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2 comments:
Hi Kenny,
Just wanted to let you know we all love you very and are sending you our love and positive thoughts from California.
Hey dad. I want you to know I love you everyday and you went through so much more then I realized as a kid. I look up to your strength everyday.
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