Got up this morning headed over to the Mayo Clinic got there at 715 and they made sure my insurance was all setup before they did anything else. After that I headed up to the ninth floor of the Gonda building. This place is enormous and beautiful, state of the art everything. Marble everywhere. Very cool buildings. I get up to the ninth floor and when I talk to the guy there he just says I drop off the paperwork and my medical records and then come back at 12:30. I need to head to some other building to get my blood drawn. I haven't eaten in over 13 hours and I am getting hungry. I have to wait to eat until after they draw my blood. Took forever to do that. The three people to my left are discussing their dialysis and their kidney transplants. After 30 minutes I finally got called to get my blood drawn. I showed them my awesome powerport card and they were happy to see it. they took some blood and told me there was no good breakfast places. The cafeteria (suck balls) was the best place.
After that my dad and I headed to the cafeteria, if I wasn't so starving it would have sucked but it was OK. I had scrambled eggs, bacon, sausage, potatoes and wheat toast. Good enough. Came back to the hotel and took a nap, I had woken up at 5 am so it was good. What was bad was my dad farts and snores a lot while he sleeps. Not so good
Got up at 11:30 and got ready and headed back to the Mayo Clinic to meet the oncologist. Got there at 12:15 and appointment was at 12:30 but didn't get in until 1:45 then waited till 2:15 for the doctor to finally show up. She was very nice, maybe a Nordic accent of some kind I didn't' ask just wanted to get through this all. She said she looked at all my stuff and that surgery is the only option. there is no cure there is nothing else just, everything done in Boise is what can be done. She wanted to ask the Liver oncology surgeon what he thought and said he would be in there. Now this was bad news to me because I was told in Boise because the nodules were so numerous they couldn't fix my liver. This is why I was there. I asked about micro spheres but she said that wouldn't work in this case. More for larger nodules. So I was pretty bummed at this point, figured nothing could be done just chemo until either they shrink enough (hopefully) so that surgery becomes an option again or die.
About 45 minutes later the surgeon and his team of 2 dudes and a woman came in. He said he could do the operation, would lose the whole right side of my liver including my gall bladder because most of the nodules were on that side. Then he would dissect the left side. Losing a little over 60 percent of my current liver. This would mean the redisection of my lower colon as well, this means a temporary bag again for a couple weeks. But if this is all successful followed by some re chemo then my cancer is gone, cured. Just checkups to make sure. Figure I might be all good by August then. Sounds good to me. I talked to the Colon surgeon as well and he just told me the same thing they told me in Boise a couple months ago.
I have to stop taking Avistan which is one of the chemo drugs and start taking urbatux which will cause a rash on my face. (SWEET) What is funny is my mom recommended this when they started the Avistan. This seems like if I didn't do this I would probably be dead in a couple years so at least there is hope lets just hope the chemo keeps everything at bay. I have to have chemo for 5 more weeks then 4 weeks of nothing. Then come back here to Rochester for a CT scan and the surgery. (Now I have to get my insurance to cover it)
Fingers Crossed the surgeon here can do it. Will talk to Boise not happy about all this at all. This should all be possible there but their lack of confidence in their surgeon is why it can't happen. Is there added risk doing it. Need some things to come together but best news I have had in a while. Two more days in Rochester (the worst city in America to do anything), with my dad and nothing planned. The other night at the mall there was 5 tables full of nerds playing magic the gathering made me laugh out loud. My dad thought they were playing poker but I saw the box for Magic and some dice. Man that was good humor.
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